Ministry of Public Health claims the rare disease patient's subsidy policy will be made

Ministry of Public Health claims the rare disease patient's subsidy policy will be made
Beijing Times reports on December 15 they a group of dagger-axe thank a disease patient, survive, live only by the medicine of the subsidy of a company of foreign countries. When this company meets the production predicament to suspend and help, they fall into torment of illness, some people are critically ill.
Dagger-axe thank disease only one in the the intersection of nearly 6000 kinds and rare disease. There is not a therapeutic medicine at home, purchase the extremely expensive, most rare disease number of medicine from foreign countries not to bring into the medical insurance system, this is the predicament that rare disease patients generally meet. Yesterday, the relevant persons in charge of Ministry of Public Health said, would make the corresponding slope subsidy measure as to the basic research that rare disease made a diagnosis and gave treatment, and will improve and ensure succouring competence with the society to patient's medical treatment of rare disease progressively.
Countermeasure
Rare disease should include in the medical insurance
China Charity Federation Deputy Secretary-general, the intersection of China Charity Federation and rare disease succour director Ma GuiLin, say, since 2008, the charitable union puts forward the proposal or motion regarding rare disease legislate to ensure on beginning through deputy to the National People's Congress, member of the CPPCC National Committee two Conferences, in the hope of further promoting the country to bring the treatment of the rare disease into the category of the medical insurance as soon as possible, but produce little effect.
Director of research center Wang ChenGuang thinks the hygiene law of the law school of Tsing-Hua University, social economy develops into certain level, it is the responsibility of the government to offer the medical guarantee to rare disease patient, "how much kinds of rare disease include in, ensure range, protect get any intensity, can launch progressively according to government's financial resources, but the prerequisite is to need to bring this colony into the medical security system. On this, the government should take the positive attitude. "
Wang ChenGuang says, brings rare disease into the medical security system, it is not to do the package method, can move forward progressively. A lot of rare disease to have no idea treatment now, " government can well have the intersection of way and treatment, rare the intersection of disease and number that can treat include security system in first, offer essential medical guarantee and economic aid to rare disease patient. " He proposes, the place with financial capability can bring rare disease into the local medical insurance range, needn't wait for the nationwide legislation to come out.
Xu KaiFeng proposes too, the related departments can the certain amounts of following diseases bale the morbidity in unison, list the catalogue, include every administration of rare disease in the medical insurance wholly, submit an expense account.

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